Forum van de Landelijke Vereniging voor Vitiligo-Patiënten

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Auteur Discussie: Looking for experience exchange
Captain
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Gepost op: 10-03-2010, 19:33:02
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Unfortunately I’m not speaking Dutch. I’m now already three years in the Netherlands working and leaving and got one year ago the diagnostic Vililigo. I had ups and downs and recently new spots.
May someone is interested to exchange experience on which therapy, UVB, Creams, Doctors, etc..

I don’t see a positive change for me and look forward for a positive experience exchange.

Thx a lot
Capitan

p.s. I hope my question is fortune in that forum?!
 
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Anna
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Antwoorden #1 Gepost op: 13-03-2010, 23:25:57
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Did you ever try therapy for your vitiligo, UV A or B, cortisonen creme, protopic?
I can recommend you to make an appointment with a doctor in the SNIP, THE pigmentdisorder clinic in the Nethherlands within the Amsterdam Medical University Center (AMC).
see their english website: http://www.pigmentdisorders.com/index.php?lang=english
They can diagnose what the best possible therapy for you can be. If you choose for therapy it's generaly spoken better to start as soon as possible.
Anna
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Captain
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Antwoorden #2 Gepost op: 28-03-2010, 08:33:03
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Thx a lot for your replay. Yes I had/have a therapy with UVB 311nm and Cutivate Creme. And it looks like it is working. For a half a year or so spots been reduced/disappeared. And also I’m at the AMC since a year but I’m not really happy. Every time I  had an appointment another Student looked at me ask the same questions and even worse the last one even not took a picture to compare and follow up progress. That’s why I ask for other experiences may you can share with me.
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