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Breaking news.
On January 15, 2025, the official announcement and handover of the European Vitiligo White Paper took place in the European Parliament (legislative body of the European Union) in Brussels.
This document is an important milestone with a lot of information and recommendations. It will serve as a reference framework for the promotion of the interests of vitiligo patients in the coming years.
Spotlight! No. 3 (September 2024)
In the September issue of Spotlight!, the editors look back extensively on the pleasant gathering at the end of June in Utrecht. Members and non-members celebrated World Vitiligo Day there
Spotlight! No. 2 (June 2024)
In the summer issue of Spotlight! ;
♦ the sensitive story of a 23-year-old student;
♦ appearance;
♦ new series The Volunteer;
♦ Is there a relationship between hormones and vitiligo?
Member Day Vitiligo.nl 2024
The biennial members day scheduled for October 6 will be moved to June 23 for organizational reasons and will be held in combination with World Vitiligo Day.
Both separate and joint program components are provided for members and non-members. The full program will be finalized and announced later.
Spotlight! No. 1 (March 2024)
In the March issue of Spotlight! :
♦ Webinar The disease burden of vitiligo
♦ How do self-tanning products work;
♦ Study project for students at Fontys University of Applied Sciences;
Ziggy has a skin condition
Play a game with a character that looks like you. That was far from possible for 13-year-old Ziggy. He has the skin condition vitiligo.
But now it is possible. In-game Sims 4 is it possible to make a game figure with the skin condition. And Ziggy is very happy with that.
Webinar The disease burden of vitiligo
Patrick Kemperman is a psychodermatologist at the University Medical Center in Amsterdam. Together with Paul Monteiro, chairman of patient association Vitiligo.nl, he talks in this webinar about the importance of more attention to the psychosocial consequences of vitiligo.
Color change: from dark to white
Paul Monteiro has had vitiligo since he was 12 years old.
Monteiro initially had colored skin, but due to vitiligo he lost all his pigment. It has become so white that it must continuously protect itself from sunlight. He was therefore not bothered by the color change.
World Vitiligo Day June 25, 2024
Tuesday, June 25 is World Vitiligo Day, because this day does not fall on a weekend, we will hold it on Sunday, June 23!
You will hear the location later, but I can already tell you that it is great!
Anny Huidheld of the Skin Fund
Your skin is the largest organ of your body and has a major impact on how you feel and how you think you are perceived by others.