Live, enjoy and dare..... also with vitiligo!

Board composition

                                     Paul Monteiro, Chair
paul@vitiligo.nl
Paul (1947) lives in Oosterhout (NB) and is a (former) entrepreneur in the field of healthcare services. He has been using his knowledge and experience for Vitiligo.nl since 2009. He also practices abstract painting and, together with his wife, runs three shelters for HIV/AIDS-infected children, often orphans, in Suriname. Paul:
“I challenge professionals to also use their knowledge, skills and experience to help patient organizations professionalize. Don't just follow the paved path, but push the boundaries: this inspiration gives room for all creativity. And very satisfying. At least me!”

Ed Halmans, Treasurer
ed@vitiligo.nl
Ed (1952) lives in Roermond and works as a Business Controller at a Smurfit Kappa paper factory until mid-2018. Now he is retired. He has been a board member since 2000 and takes care of the subsidy application and the accounting. He also maintains contacts with the volunteers who take care of the membership administration.


Chloe van Geffen, general board member
chloe@vitiligo.nl
Chloé (1992) lives in 's-Hertogenbosch and has been part of the board of Vitiligo.nl as a general board member since June/July 2023.
In daily life I work as an employment law lawyer in the government, education and healthcare sectors. In addition to my daily work, I would like to volunteer. Since I have had vitiligo since 2014 and have been a member of Vitiligo.nl for several years, it was only a small step to take a seat on the board.

 

Leo Pekaar, General board member ICT
leo@vitiligo.nl
Leo Pekaar (1951) retired hydraulic engineer lives in Yerseke. As an ICT board member, he supports the other board members with the organizational side of ICT within the association and manages the various social media. Due to extensive work experience, including in technical automation, he is widely applicable and he believes it is important to involve vitiligo patients in the regions with Vitiligo.nl.



Marc van Ravenhorst, Volunteer coordinator
marc@vitiligo.nl
Marc van Ravenhorst (1985)
I live with my wife and three children in Barneveld. I work at Toyota Material Handling, where I am a manager in a department that develops and sells services. I am a volunteer coordinator on the board of Vitiligo.nl. It is an important role, as no association can function without volunteers. And just like at work, in this position I have to coach people. I was diagnosed with vitiligo when I was 3 and I have been a member of the association since 1996. In the years that followed, I was hardly involved, but after my burn out in 2017 I started to better understand the role of vitiligo in my life. This created the need to become more involved with Vitiligo.nl. When I read that there was a need for board members, that was reason for me to talk to the chairman. Hopefully I can make a good contribution to achieving the objectives of the association.

 

Alwin Reijnhoudt, General board member
alwin@vitiligo.nl
Alwin (1983) lives near Rotterdam and has been a board member of the association since January 2020.

“In daily life, I am a father of 3 children and also an account manager in the food industry. I have had vitiligo since I was a teenager, which has further spread in recent years. Because I have been a member for years, I know the association from the patient side. Now that my children are older, I can spend my time differently and I would like to use this for Vitiligo.nl. Together with the other enthusiastic board members with knowledge and experience, I try to help the association with my input.”

 Marianne van Ooijen Secretary
marianne@vitiligo.nl 

 Marianne (1956) lives in Roermond and works as an official secretary for works councils in the healthcare and municipal sector until July 1, 2023.

She does not have vitiligo herself, but her husband and (now deceased) father do have vitiligo.
There is therefore a lot of interest in possible remedies, especially with regard to the two now adult sons, who do not (yet) have vitiligo.
With my retirement in sight and already looking for an interesting alternative activity, the vacancy for secretary of the Vitiligo Association came my way just in time.
As secretary, I support the board in the broadest sense of the word.


 Communication


Vacant



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