Contact with fellow sufferers
Vitiligo.nl ensures that vitiligo patients can exchange experiences with each other. Topics such as shame, appearance, stress and the meaning of vitiligo for relationships, sexuality, school and work are discussed at members' days and in the closed group on Facebook. What does it mean to live with vitiligo? How does it affect your daily life? What helped you learn to deal with it? How did you become resilient? As an expert by experience, you have a lot to offer other vitiligo patients. So join the discussion on Facebook.
What would a fellow sufferer do?
Questions that have been asked in the past
“Take that first snow-white eyebrow hair a few weeks ago. Suddenly I saw it. What shall I do? Do I pull it out by the roots or will I have no eyebrows left? Should I paint them now?”
Monique
“Who else has vitiligo on the face? How do you deal with that? It makes me so anxious, now that it's also near my hairline. It disturbs my whole face. In the summer I like to work in the garden, but because of my perfume allergy I can't use any sunscreen. Does anyone have a tip for a perfume-free sunscreen?”
A young grandmother of 52
“I would like to get in touch with other children my age with vitiligo. I am very sorry that I have vitiligo and feel very alone. I've never seen anyone my age with vitiligo.”
Margot, 14 years old