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Podcast Under the Magnifying Glass
In the June Spotlight, we announced that Vitiligo.nl is developing a podcast. In collaboration with the podcast "Onder de Loep," we're creating an episode specifically about vitiligo. In this episode, we'll be talking with dermatologist Marcel Bekkenk of Amsterdam UMC about vitiligo.
Advice on reimbursement of ruxolitinib cream (Opzelura®)
The Dutch Healthcare Institute has declared the dossier concerning the medicinal product ruxolitinib cream (Opzelura®) complete for certain people with a depigmenting skin condition (vitiligo) affecting the face. It has started assessing whether the cream can be reimbursed from the basic health insurance package.
Spotlight! No. 3 (September 2025)
In the September issue of Spotlight!:
♦ Much attention was paid to the recent World Vitiligo Day in Amsterdam;
♦ Sudden flare-up of vitiligo;
♦Does your meeting lead to spontaneous and surprising conversations?
Roos (18) has the same condition as Michael Jackson
Roos Bouman (18) from Gouda has the same condition as the late Michael Jackson: vitiligo. On the day of his death, June 25, she and her fellow sufferers asked for attention in Amsterdam. In costumes, she posed in living paintings on the Noordermarkt.
Chloé from Den Bosch is in the spotlight on World Vitiligo Day
Chloé van Geffen from Den Bosch was in the national spotlight on June 25 during 'Living Canvas – The Art of Vitiligo', an art manifestation on the Noordermarkt in Amsterdam on the occasion of World Vitiligo Day.
We deserve to be seen
Alkmaar's Maggie van Spall (74) touches hearts on World Vitiligo Day: “We deserve to be seen – as we are”
Become a painting yourself!
On World Vitiligo Day, you can be photographed at the Noordermarkt in Amsterdam in two iconic tableaux vivants – inspired by the style of Rembrandt:
World Vitiligo Day 2025
On Wednesday, June 25 – World Vitiligo Day – Vitiligo.nl will present the event Living Canvas – The Art of Vitiligo in Amsterdam.
From young to old, about twenty volunteers bring vitiligo to life with classic paintings by Rembrandt and Van Gogh, among others.
In historical costumes they literally show themselves in a context from which they had previously been absent for centuries.
This creates a colorful tableau vivant.
Spot January 2025
The Espot is a digital publication of the patient association Vitiligo.nl and is shipped free of charge.
Breaking news.
On January 15, 2025, the official announcement and handover of the European Vitiligo White Paper took place in the European Parliament (legislative body of the European Union) in Brussels.
This document is an important milestone with a lot of information and recommendations. It will serve as a reference framework for the promotion of the interests of vitiligo patients in the coming years.